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The FARE National Food Allergy Conference will be held May 14-15, 2016 at the Hyatt Regency Orlando in Orlando, FL, gathering the country’s leading food allergy experts and members of the food allergy community together for a weekend of world-class programming. Register now!

This agenda is being updated with additional session and presenter details. For conference content questions, contact Lynn at lheun@foodallergy.org. 
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Friday, May 13
 

6:00pm

Exhibit Hall Opening

FARE is pleased to present a new addition to our national conference programming.  This year we will be featuring an official exhibit hall opening and free cocktail hour from 6-8pm on Friday, May 13th.   Please join us for a unique opportunity to spend time meeting, socializing, and speaking with our exhibitors.

As an added bonus, attendees will be able to play Exhibitor Bingo throughout the weekend to be entered into a drawing for a chance to win one of several prizes, including a Kindle Fire or a Kindle Fire Kids Edition.  Come get a head start filling up your bingo card by joining us during the cocktail hour on Friday evening!

We’d like to thank our sponsors for helping us launch this exciting new component to our annual conference.


Friday May 13, 2016 6:00pm - 8:00pm
Foyer F&G

7:00pm

The Upside to Food Allergies: A Support Group for Parents and Caregivers
This support group is designed for parents and caregivers of young children with food allergies. This session will help caregivers identify the hidden stress of caring for a child with food allergies, identify ways to increase support and broaden your tribe, and discuss the importance of self-care and steps to take in order to implement this in your caregiver role. 

Speakers
JK

Jennifer Kurko

Jennifer Kurko is a licensed clinical psychotherapist specializing in the treatment of anxiety, depression and trauma. She is also the mother of two children with severe food allergies and the founder and CEO of Kiss Freely, a line of cosmetics free from all 8 major food allergens.


Friday May 13, 2016 7:00pm - 8:00pm
Plaza Ballroom D Hyatt Regency Orlando

8:00pm

Support Group: Managing Eosiniphilic Disorders

This session provides an opportunity to share stories and discuss strategies to optimize the quality of life for those living with and caring for individuals with eosinophilic disorder.


Speakers
avatar for Libby Lichtenauer

Libby Lichtenauer

Libby Lichtenauer is a wife and mother of two young kids from Kansas City. Her family's allergy journey began after their youngest son had an anaphylacticreaction at 13 mo old. Her husband and two kids all have severe food allergies.Additionally, her oldest child was diagnosed with an eosinophil disease. Her stories and experiences come from the heart and are directed to help other parents as she knowsfirst hand how overwhelming, isolating, and... Read More →
avatar for Linda Temple, MS, RDN, LDN

Linda Temple, MS, RDN, LDN

Community Engagement Senior Associate, Food Allergy Research & Education
Linda serves as a community liaison for FARE’s education initiatives – including the FARE College Food Allergy Program, the SafeFARE: Dining Out with Food Allergies program, the FARE Education Network – and supports state-level advocacy efforts, while also building community partnerships that will support signature development efforts.  Linda is a Registered Dietitian with a Master of Science degree in nutrition and is a... Read More →


Friday May 13, 2016 8:00pm - 9:00pm
Plaza Ballroom E Hyatt Regency Orlando
 
Saturday, May 14
 

8:00am

9:30am

Teen Kickoff Session
Saturday May 14, 2016 9:30am - 10:00am
Plaza Ballroom D Hyatt Regency Orlando

9:30am

Transforming the Devastating Diagnosis

Some events in life have such a tremendous impact that life is viewed as “before” and “after” this life-changing occurrence. For some, that event was a child’s diagnosis of life-threatening food allergies.

Even after learning how to read labels, bake “safe” cupcakes, and wipe down airplane seats, many allergy parents still struggle with feelings of guilt, fear, sadness and anger, and are overwhelmed for months or even years after their child’s initial diagnosis.

In this session, participants will learn about the “Cycle of Change,” a framework for adjusting to life with food allergies. Each stage requires a different perspective and strategies for adapting to a “new normal” life while caring for oneself in the process.


Speakers
avatar for Gina Clowes

Gina Clowes

Gina Clowes is National Director, Training and Community Outreach for Food Allergy Research & Education (FARE), and Program Director for a cooperative agreement with the | Centers for Disease Control and Prevention (CDC).  She is the founder of the | online support group AllergyMoms.com serving thousands of families and | professional members worldwide. A well-known speaker, coach and consultant, | her advice has appeared in... Read More →


Saturday May 14, 2016 9:30am - 10:30am
Florida Ballroom A-B Hyatt Regency Orlando

9:30am

Nutrition Challenges Made Simple, Safe and Healthy
This session highlights how choosing safe foods while avoiding food allergens may be compromising health.  Avoiding the allergenic foods is necessary, but not replacing the nutrients found in those foods may be risky. Participants will gain the knowledge to make healthier food selections and still maintain safe preferences.  Join us as we discuss the nutritional challenges for parents of children with food allergies and how to avoid nutritional deficiencies with simple substitutions. 

3 Measurable Objectives
1. Understand and be able to identify the 3 most common nutritional deficiencies.
2. Recognize and list healthier alternatives for the top eight allergens.
3. Develop basic knowledge on meal planning.

Speakers
avatar for Ellen Karlin, MMSc,RDN,LDN,FADA

Ellen Karlin, MMSc,RDN,LDN,FADA

Ellen Karlin, a nutrition consultant with vast professional and personal knowledge and | expertise in food allergies, has worked at the Comprehensive Asthma and Allergy | Center in Maryland for the past 26 years. Ellen holds a Master of Science degree in | nutrition education from Emory University. She is a member of Food Allergy Research | and Education (FARE) and serves as a volunteer for this organization. Ellen presented | at the FARE... Read More →
avatar for Lisa Musician, RD LDN

Lisa Musician, RD LDN

Lisa Musician, RD LDN has over 17 years of experience working with a board certified allergist and is a member of several national and state organizations.  She holds several certifications of training as a Food Allergy Specialist and speaks professionally to organizations, schools and support groups about the management of food allergies and increasing optimal health.   Not only does Lisa have experience managing her own food... Read More →
avatar for Melanie Potock, MA, CCC-SLP

Melanie Potock, MA, CCC-SLP

Melanie is an international speaker, certified speech language pathologist and pediatric feeding specialist. Her work includes treating children with special dietary needs and helping them learn to enjoy new foods. Melanie is the author/co-author of three books, including the 2015 award winning Raising a Healthy Happy Eater: A Stage by Stage Guide to Setting Your Child on the Path to Adventurous Eating and the newly released Baby Self-Feeding... Read More →


Saturday May 14, 2016 9:30am - 10:30am
Florida Ballroom C

9:30am

Food Allergies and Restaurants: Industry Perspectives and Patron Best Practices
Dining outside the home can be difficult for individuals with food allergies, as they must rely on restaurant staff to properly prepare their allergen free meal. Food allergens are a growing public health concern, yet restaurants differ in their food allergen knowledge and practices, indicating gaps in education and training. This session will present the findings from a recent CDC study, and is aimed at educating restaurant patrons on the food allergen knowledge and practices of managers and staff. For example, do managers know what to do if a customer is having a bad food allergic reaction? How are food workers told that there is an order for a food allergic customer? Have servers received any training on food allergies?

Attendees will leave the presentation armed with information that they can apply at their next restaurant visit to ensure a safer dining experience. They will also receive practical guidance on how to have a safer, less stressful dining experience, and engage dining establishments in training that will allow them to better meet the needs of consumers. 

Speakers
avatar for Kristi Grim

Kristi Grim

National Programs Manager, Food Allergy Research & Education
Kristi Grim is the College Outreach Manager for Food Allergy Research & Education (FARE).  As part of the FARE team, Kristi works to ensure the safety and inclusion of students with food allergies on college campuses.  Kristi worked with committees and expert stakeholders to develop FARE's Pilot Guidelines for Managing Food Allergies in Higher Education, which form the basis for the College Food Allergy Program. She worked with... Read More →
avatar for Taylor Radke

Taylor Radke

ORISE Fellow, CDC
Taylor Radke is a Research Fellow at the Centers for Disease Control and Prevention. She joined CDC's food safety team in October 2014, and has primarily focused on the analysis and interpretation of the data from food safety studies.
avatar for Joel Schaefer

Joel Schaefer

Executive Chef
Joel is a certified Chef de Cuisine with the American Culinary Federation and a Certified Hospitality Trainer with the American Hotel and Lodging Association. He is the author of Serving People with Food Allergies: Kitchen Management and Menu Creation. He has worked with FARE to provide quality-training material for their food service programs. He worked as a subject matter expert on the ServSafe Allergens™ for the National... Read More →


Saturday May 14, 2016 9:30am - 10:30am
Plaza Ballroom E Hyatt Regency Orlando

10:00am

CARPE EPI: Designing The Campus Food Allergy Experience

The College Anaphylaxis Response Preparedness and Epinephrine Access Study

(CARPE) is currently underway at Northwestern University.  Join Dr. Ruchi Gupta and graduate students from the MS, Engineering Design Innovation program to review and test the interventions they are designing to raise awareness of anaphylaxis and increase access to epinephrine on college campuses.

Dr. Gupta and the students will share barriers students entering college face and possible solutions. Our team has been interviewing key stakeholders and prototyping interventions to improve the day to day experience of students with food allergies on college campuses.  We¹re looking at key touchpoints of campus life, including: the transition to campus, new student orientation, emergencies in the dining hall, campus teams and clubs, and large campus events and festivals.  As human-centered designers, we believe in the power of collaborative design.

Please come share your experiences, insights and critique.  We look forward to designing the campus Food Allergy Experience together!


Saturday May 14, 2016 10:00am - 10:30am
Plaza Ballroom D Hyatt Regency Orlando

10:30am

Break
Saturday May 14, 2016 10:30am - 10:45am
Plaza International Ballroom G

10:45am

Planning for College with Food Allergies: Information and Strategies for Students
College and university practices that respond to the needs of their student population with food allergies vary, sometimes significantly, from one institution to another. Knowing how to evaluate and select the right college to meet all of your needs is critical. Knowing what accommodations will help to keep you safe is also critical. In this workshop, practical and important information will be shared to give college-boundstudents with food allergies, and their families, recommended steps and "Tips" for effective college planning. Key elements will include what to consider for initial planning, what actions to take after acceptance, and strategies for living safely, and fully, while away at college.

Speakers
avatar for Jan Hanson, M.A.

Jan Hanson, M.A.

Founder, Educating For Food Allergies, LLC
Jan Hanson, M.A. is a nationally recognized food allergy educator, author and speaker. | She founded her consulting company, Educating For Food Allergies, LLC in 2001, and | provides guidance to families and school personnel in food allergy management. She is | the author of the book, Food Allergies: A Recipe For Success At School, and has been | utilized as an expert by both radio and print journalists, including in the Miami Herald | and... Read More →


Saturday May 14, 2016 10:45am - 11:45am
Plaza Ballroom D Hyatt Regency Orlando

10:45am

Educating a Whole School Community about Food Allergies - One District's Journey
After a child experienced a dangerous reaction to a food allergy, our school community became engaged in a hot debate - should food allergens be banned from all schools in the district or would that be unfair to kids who enjoy those specific foods?

We determined that it was imperative that we figure out how to keep all kids safe and imperative that we help our community reconnect with each other.

We formed a committee of parents, staff, and students.  Though we expected that this group of interested participants would all be "on the same page", we quickly discovered that there were passionate beliefs on both sides of the issue - even among families dealing with food allergies.  

Together, we embarked on a journey to educate our community about the facts of life threatening food allergies.  Moreover, we collaborated to help our community wrap their arms around all students so that our children feel understood and safe at school.

Our journey has not been down a straight path.  We've had ups and downs and discovered that one answer does not work for everyone.  We have a lot still to do, but are excited about the path we are on together.

Speakers
LB

Lori Bein, Ed.D.

Dr. Lori Bein is the Superintendent of Arlington Heights School District 25, a suburban Chicago district.  Following a child's dangerous reaction to a food allergy, Dr. Bein organized a district-wide committee of parents, teachers, and students with the goal of working together to better educate the entire district community about life threatening food allergies.
VH

Virginia Hiltz

Ginny Hiltz is the Assistant Principal and Student Services Coordinator at a K-5 school.Windsor School also hosts a communications and foundations program serving children with special needs. Ms. Hiltz is an active member of the school district's Allergy Awareness Committee.
avatar for Eric Larson

Eric Larson

Principal, Patton Elementary School
I currently serve as the principal of Patton Elementary School, which is part of School District 25 in Arlington Heights, in the northwest suburbs of Chicago, IL. I have been working in education for 13 years and have served as a middle school teacher, middle school assistant principal, and now an elementary principal. | | I enjoy speaking with parents, teachers, and school administrators on ways to work collaboratively to ensure that... Read More →


Saturday May 14, 2016 10:45am - 12:15pm
Florida Ballroom C

10:45am

FAQs About Food Allergy and the Science Behind the Answers
Speakers
avatar for Syed Shahzad Mustafa

Syed Shahzad Mustafa

Dr. Mustafa completed college at the Johns Hopkins University and attended medical school at SUNY Buffalo. He then completed his internal medicine training at the University of Colorado and stayed in Denver to complete his fellowship training in allergy and clinical immunology at the University of Colorado, National Jewish Health, and Children’s Hospital of Denver. While in Denver, Dr. Mustafa was involved in research on peanut allergy and... Read More →


Saturday May 14, 2016 10:45am - 12:15pm
Plaza Ballroom E Hyatt Regency Orlando

10:45am

Food Allergies and the Law: Understanding Issues of Equal Access, Safe Inclusion, and Individual Rights

Promoting equal access and inclusion of individuals with food allergies under law, the Allergy Law Project (a free online resource) was founded by Laurel Francoeur, Esq., Mary Vargas, Esq. and Homa Woodrum, Esq. in late 2014.  Learn more about the interplay between different areas of the law and the rights of allergic individuals and their support teams in this presentation by Ms. Woodrum.  This includes labeling law, eating out, employment, attending school, transportation, and more as they relate to emerging issues.  A question and answer component will also be offered at the end of the session.  To submit questions in advance, please email admin@allergylawproject.com


Speakers
avatar for Homa Woodrum

Homa Woodrum

Attorney at Law, Woodrum Law LLC
Homa Woodrum is the owner of the law firm Woodrum Law LLC, based in Las Vegas, Nevada. Her practice is largely made up of elder law (exploitation issues), minor and adult guardianship cases, probate matters, and estate planning. Woodrum received her Juris Doctorate from the University of Nevada, Las Vegas’ William S. Boyd School of Law. She is 4.8/5 AV Peer Review Rated via Martindale Hubbell and was named a 2014 “Top&rdquo... Read More →


Saturday May 14, 2016 10:45am - 12:15pm
Florida Ballroom A-B Hyatt Regency Orlando

11:45am

Building Your Network: The Importance of Teen Support Groups and Teen Summit
This session will discuss with Teens how to find and connect with local support groups and the value of building your network through events like FARE's Teen Summit.

Speakers
DH

Daytona Hodson

Daytona Hosdson is a 13 year old member of the Quad-Cities Food Allergy Netowrk and FARE Teen Advisory Group. He's been involved in fundraising activities both locally and nationally, and continues to do so to raise awareness about food allergies.


Saturday May 14, 2016 11:45am - 12:15pm
Plaza Ballroom D Hyatt Regency Orlando

12:15pm

Lunch Break
Saturday May 14, 2016 12:15pm - 2:00pm
On Own

2:00pm

Adapting to Adult Food Allergies with Assurance

Learn frequently overlooked symptoms and how common (top 8 food allergens) and not so common foods can be replaced in the diet to ensure adequate nutrition. Gain knowledge on how to create peace in the work place and discover how one simple tip can make your life more adaptable when dining out and traveling. Join us as we discuss the benefits of suddenly changing your diet as an adult and adapting with confidence.

 3 Measurable Objectives:

1. Understand and be able to identify the top eight allergens and what foods can be substituted to ensure adequate nutrition. Discuss the not so common food allergens.

2.  Optimize the workplace to create a safe environment.

3. Learn improved communication for dining out and traveling to boost your confidence

Speakers
avatar for Ellen Karlin, MMSc,RDN,LDN,FADA

Ellen Karlin, MMSc,RDN,LDN,FADA

Ellen Karlin, a nutrition consultant with vast professional and personal knowledge and | expertise in food allergies, has worked at the Comprehensive Asthma and Allergy | Center in Maryland for the past 26 years. Ellen holds a Master of Science degree in | nutrition education from Emory University. She is a member of Food Allergy Research | and Education (FARE) and serves as a volunteer for this organization. Ellen presented | at the FARE... Read More →
avatar for Lisa Musician, RD LDN

Lisa Musician, RD LDN

Lisa Musician, RD LDN has over 17 years of experience working with a board certified allergist and is a member of several national and state organizations.  She holds several certifications of training as a Food Allergy Specialist and speaks professionally to organizations, schools and support groups about the management of food allergies and increasing optimal health.   Not only does Lisa have experience managing her own food... Read More →


Saturday May 14, 2016 2:00pm - 2:55pm
Plaza Ballroom E Hyatt Regency Orlando

2:00pm

Safe at School: What Every Parent Needs to Know

Do you have questions about how to keep your child safe at school? Join us to discover the must-know facts, and easy ways to help protect your child at school.Parents are their children’s best advocates. Those who understand their children’s rights, what works well to protect allergic children, and how to work well with school staff havethe very best chance of helping to create a safe and inclusiveenvironment.Important features of the CDC’s National Guidelines forManaging Food Allergies at school will be highlighted, andtake-home resources will be provided to all attendees of this session.


Speakers
avatar for Gina Clowes

Gina Clowes

Gina Clowes is National Director, Training and Community Outreach for Food Allergy Research & Education (FARE), and Program Director for a cooperative agreement with the | Centers for Disease Control and Prevention (CDC).  She is the founder of the | online support group AllergyMoms.com serving thousands of families and | professional members worldwide. A well-known speaker, coach and consultant, | her advice has appeared in... Read More →
avatar for Karie Mulkowsky

Karie Mulkowsky

Karie Mulkowsky is National Programs Manager and CDC Project Manager for Food Allergy Research and Education (FARE).  As part of the FARE team, Karie works to ensure the safety and inclusion of students with food allergies at school. Karie has been responsible for supporting and coordinating the implementation of all planned project objectives and activities for the cooperative agreement that FARE has with the Centers for Disease Control and... Read More →


Saturday May 14, 2016 2:00pm - 2:55pm
Florida Ballroom A-B Hyatt Regency Orlando

2:00pm

Anaphylaxis: Case Reports, Outcomes, and Personal Perspectives
When anaphylaxis strikes a family managing food allergies, the incredible fear, trauma and grief that follow are often difficult to describe.Trish will detail 3 different personal case reports of anaphylaxis discussing first from the perspectives of a parent, an adult living with food allergies, and a nurse. Trish will convey the issues that parents confront in these moments as an allergic reaction unfolds. How do you call for an ambulance—what exactly should you say? While no medical direction will be given in this talk, Trish will lead a parent-friendly discussion of the physiological changes that take place in the human body, paired with a brief discussion of the impact of first line agents that are used to treat anaphylaxis. The talk will conclude with a final reference to each personal scenario of anaphylaxis and why the medications and steps taken contributed to successful outcomes.

Speakers
avatar for Trish Gavankar, RN, BS

Trish Gavankar, RN, BS

Trish Gavankar RN, BS (CCRN), is an adult with food allergies, parent of a daughter | with nearly 20 food allergies, national speaker, support group leader and food allergy | advocate since 2003. She has a medical background and is an RN, BS (CCRN), who | formerly worked as a Clinical Nurse Manager, Clinical Educator and staff nurse in ICU, | ER and Critical Care. Her unique consulting business, Rock Food Allergies Consulting, | will focus on... Read More →


Saturday May 14, 2016 2:00pm - 2:55pm
Florida Ballroom C

2:00pm

Kids Session: Talking about "Itchy Foods"
This presentation, geared toward elementary school children with and without food allergies, as well as their parents, is a unique conference program opportunity we are introducing this year. Parents who are traveling to Orlando with younger children may bring them to this session as long as the parent is registered for the conference. Kids and their parents will learn the most common food allergens, signs and symptoms, and prevention/management strategies in a way that's developmentally appropriate and provides an opportunity for kids to share stories. Child participants will learn ways to talk to other kids about their food allergies in a positive way that emphasizes non-threatening terminology, and extend their knowledge of food allergies by having a plan for prevention and management.

Children 10 and under need not be registered for the conference to attend this session, as long as their parent is registered. Please note that all other conference programming is not geared toward a young audience, and parents should plan accordingly. 

Speakers
avatar for Sarah Valaika

Sarah Valaika

Founder/Food Allergy Educator, Stay Away Itchy Foods
Sarah Valaika holds a MS degree in Child Development from the Erikson Institute in Chicago and has taught for 9 years in the Education Department at Triton College across a wide range of early childhood courses: Health, Safety & Nutrition; Creative Activities; Language Development; Science & Math, Intro to ECE, Child Development, Seminar & Practicum. She is also an Adjunct Professor in the Department of Graduate and Innovative... Read More →


Saturday May 14, 2016 2:00pm - 2:55pm
Plaza Ballroom F

2:00pm

Ask the Allergist: a Question and Answer Session for Teens
This program, open only to teens with food allergies, will allow those in attendance to ask Dr. Syed Shahzad Mustafa questions about their health in a private and supportive environment. Have a question that you have always wanted to know the answer to but have been afraid to ask? This is your chance!

Speakers
avatar for Syed Shahzad Mustafa

Syed Shahzad Mustafa

Dr. Mustafa completed college at the Johns Hopkins University and attended medical school at SUNY Buffalo. He then completed his internal medicine training at the University of Colorado and stayed in Denver to complete his fellowship training in allergy and clinical immunology at the University of Colorado, National Jewish Health, and Children’s Hospital of Denver. While in Denver, Dr. Mustafa was involved in research on peanut allergy and... Read More →


Saturday May 14, 2016 2:00pm - 2:55pm
Plaza Ballroom D Hyatt Regency Orlando

3:00pm

When Do I Use Epinephrine?
Epinephrine is the first line treatment for anaphylaxis. However, studies have shown that epinephrine is underutilized by patients. There are a variety of reasons why patients are not using epinephrine for anaphylaxis, including being unsure or afraid to use it. In this talk, we will address the clinical scenarios in which epinephrine should be used and help alleviate fear in using it.

Speakers
avatar for Miguel Park, MD

Miguel Park, MD

Dr. Park is an adult and pediatric allergist with the Mayo Clinic, with interest areas in drug allergies and anaphylaxis.
avatar for Thanai Pongdee, MD

Thanai Pongdee, MD

Dr. Pongdee is an adult and pediatric allergist at the Mayo Clinic with a passion for education and providing excellent care for his patients.


Saturday May 14, 2016 3:00pm - 3:55pm
Plaza Ballroom F

3:00pm

Research Meets Life: Becoming the Parent of a Child with Life-Threatening Food Allergies
Parents of children with life-threatening food allergies are challenged in the day-to-day management of their child's diagnosis. Social norms would suggest the parenting role is one that would offer a child protection from physical, emotional, and social harm.  However, once a child is diagnosed with FIA, parental competency is often severely challenged, calling into question the parents' ability to succeed in the parenting role. Parenting a child with life-threatening food allergies is a learned role that requires expanding existing parental competency and developing new skills to manage newly identified, life-threatening needs. Through extensive interviews, parents shared with our presenter their day-to-day management of their child's needs. Providing the foundation of Broome's doctoral dissertation, this session will share research findings and provide practical guidance for parents and caregivers.

Speakers
avatar for Brantlee Broome, PhD, MSN, RN

Brantlee Broome, PhD, MSN, RN

Brantlee Broome, PhD, MSN, RN, is an Assistant Professor of Nursing at Jacksonville University. She has worked as a Registered Nurse for the past 16 years. Dr. Broome obtained her BSN from Clemson University; her MSN from Jacksonville University; and her PhD in Nursing Sciences from the University of Florida. Dr. Broome’s research interests include care of patients with chronic illness, specifically pediatric food allergy; family centered... Read More →


Saturday May 14, 2016 3:00pm - 3:55pm
Florida Ballroom C

3:00pm

FARE Advocacy and Education Updates

Thanks to strong support from community advocates and leaders, FARE is the leading voice to improve the environment for individuals with food allergies, including all those at risk for life-threatening anaphylaxis. FARE and its volunteer network of advocates is active in issues involving school policies, food labeling, restaurant regulations, emergency services and transportation. 

Advocacy at FARE means working with policymakers at all levels of government on initiatives and laws focused on making the world safer for the food allergy community.  It gives the food allergy community the opportunity to contribute to making that change happen. Advocates are the life-blood of FARE's advocacy program, delivering a message of awareness, access and safety to governmental leaders. 

 

Join us in this session for an update on FARE’s advocacy initiatives over the last year and our look ahead at the coming year.  Learn about when and where you can get involved to make a difference.  


Speakers
avatar for Jennifer Jobrack

Jennifer Jobrack

Jen Jobrack is the Senior National Director of Advocacy at FARE. She manages the state, municipal, and industry-specific policy portfolio focused on the inclusion and safety of people with food allergies, which afflict some 15 million Americans, 5.9 million of whom are children.  Current campaigns include access to epinephrine in schools,  college and university preparedness for students with food allergies, and restaurant... Read More →
avatar for Scott Riccio

Scott Riccio

Scott joined FARE as an experienced advocate and leader. He has held increasingly strategic leadership roles at various for-profit and non-profit organizations. At FARE, Scott is responsible for the overall strategic leadership of the education and advocacy departments. Scott was most recently Vice-President of Global Patient Advocacy at Synageva Biopharma, a biotechnology company based in Lexington, MA, dedicated to discovering, developing... Read More →


Saturday May 14, 2016 3:00pm - 4:30pm
Plaza Ballroom E Hyatt Regency Orlando

3:00pm

Food Allergies and the Law: Understanding Issues of Equal Access, Safe Inclusion, and Individual Rights

Promoting equal access and inclusion of individuals with food allergies under law, the Allergy Law Project (a free online resource) was founded by Laurel Francoeur, Esq., Mary Vargas, Esq. and Homa Woodrum, Esq. in late 2014.  Learn more about the interplay between different areas of the law and the rights of allergic individuals and their support teams in this presentation by Ms. Woodrum.  This includes labeling law, eating out, employment, attending school, transportation, and more as they relate to emerging issues.  A question and answer component will also be offered at the end of the session.  To submit questions in advance, please email admin@allergylawproject.com


Speakers
avatar for Homa Woodrum

Homa Woodrum

Attorney at Law, Woodrum Law LLC
Homa Woodrum is the owner of the law firm Woodrum Law LLC, based in Las Vegas, Nevada. Her practice is largely made up of elder law (exploitation issues), minor and adult guardianship cases, probate matters, and estate planning. Woodrum received her Juris Doctorate from the University of Nevada, Las Vegas’ William S. Boyd School of Law. She is 4.8/5 AV Peer Review Rated via Martindale Hubbell and was named a 2014 “Top&rdquo... Read More →


Saturday May 14, 2016 3:00pm - 4:30pm
Florida Ballroom A-B Hyatt Regency Orlando

3:00pm

Teen Toolbox for Advocacy and Independence

In this dynamic, content-rich presentation, Allie offers tangible tips on how to become independent, confident, and adventurous with food allergies.  She shares a unique perspective on what it’s like to overcome food allergies and live a healthy, happy, adventurous life! By the end of this session, teens will be able to: organize and plan for success – at home, at school, on vacation, and out in the world; be able to identify strategies to create a network of support around them; and determine practical methods to advocate for themselves, leading them on a path to independence. 


Speakers
avatar for Allie Bahn

Allie Bahn

Freelance writer/blogger, coach, Miss Allergic Reactor
Allie Bahn (a.k.a. Miss Allergic Reactor) has lived with numerous life-threatening foodallergies, environmental allergies, and asthma since childhood. She was raised by parents who understood a child’s need for independence. By teaching her self-reliance, Allie discovered how to be adventurous and travel the world without letting her food allergies inhibit her. Today, Allie is a freelance writer, blogger, and allergy awareness advocate, sharing... Read More →


Saturday May 14, 2016 3:00pm - 4:30pm
Plaza Ballroom D Hyatt Regency Orlando

4:30pm

Break
Saturday May 14, 2016 4:30pm - 4:45pm
Plaza International Ballroom G

4:45pm

FARE Vision Awards Ceremony and Raffle Drawing
Saturday May 14, 2016 4:45pm - 5:15pm
Florida Ballroom A-B Hyatt Regency Orlando

7:00pm

Adult Reception
Saturday May 14, 2016 7:00pm - 9:00pm
TBA

7:00pm

Teen Reception
Saturday May 14, 2016 7:00pm - 9:00pm
TBA
 
Sunday, May 15
 

8:00am

Teens with Food Allergies: Passing the Baton with Care and Confidence

Parents of teens know that the parenting methods used from ages 1-11 do not work nearly as well in the teen and tween years.  Add to that the fact that teenagers have the highest rate of fatal and near fatal allergic reactions and it’s clear that the stakes are high for parents to get this right. 

We do a disservice to our children if we do not prepare them to manage food allergies on their own. The good news is that there are ways to teach food allergy management  to teens that leave them open to our gentle (often disguised) guidance. This session will explore  simple ways for you to begin to gradually hand over the reigns in a safe and controlled way.


Speakers
avatar for Gina Clowes

Gina Clowes

Gina Clowes is National Director, Training and Community Outreach for Food Allergy Research & Education (FARE), and Program Director for a cooperative agreement with the | Centers for Disease Control and Prevention (CDC).  She is the founder of the | online support group AllergyMoms.com serving thousands of families and | professional members worldwide. A well-known speaker, coach and consultant, | her advice has appeared in... Read More →


Sunday May 15, 2016 8:00am - 8:55am
Florida Ballroom A-B Hyatt Regency Orlando

8:00am

When Anaphylaxis Happens: a Teen’s Experience and Perspective
Speakers
avatar for Ruchi Gupta, MD MPH

Ruchi Gupta, MD MPH

Dr. Gupta is an associate professor of pediatrics (FAAP, FAAAAI) and an interdisciplinary child health researcher. She is affiliated with both the Northwestern University Feinberg School of Medicine's Institute for Public Health and Medicine, as well as the The Ann & Robert H. Lurie Children's Hospital of Chicago's Smith Child Health Research Program. Her research portfolio spans from the clinical diagnosis and management of childhood food... Read More →
avatar for Susan Tatelli

Susan Tatelli

Susan Tatelli is a 13-year old, eighth grade student at Northwood Junior High School in Highland Park, Illinois.  She recently completed an 18-month enrollment in PRROTECT (Peanut Reactivity Reduced by Oral Tolerance in an Anti-IgE Clinical Trial).  Of the 36 subjects enrolled in PRROTECT, 8 subjects initially received placebo.  Susan was one of the control subjects in the study.  This means that Susan attempted to achieve... Read More →


Sunday May 15, 2016 8:00am - 8:55am
Plaza Ballroom D Hyatt Regency Orlando

8:00am

Tips for Trips and Safe Celebrations
Family vacations and gatherings are all meant to be fun for everyone, but when you or a member of your party has a food allergy, there's a whole lot more stress and anxiety involved with getting on the road or being on the guest list. This panel discussion will help you with travel and party planning for safer travels, as well as stress and reaction-free celebrations.

Speakers
avatar for Trish Gavankar, RN, BS

Trish Gavankar, RN, BS

Trish Gavankar RN, BS (CCRN), is an adult with food allergies, parent of a daughter | with nearly 20 food allergies, national speaker, support group leader and food allergy | advocate since 2003. She has a medical background and is an RN, BS (CCRN), who | formerly worked as a Clinical Nurse Manager, Clinical Educator and staff nurse in ICU, | ER and Critical Care. Her unique consulting business, Rock Food Allergies Consulting, | will focus on... Read More →
avatar for Tami Pyles

Tami Pyles

Founder and Food Allergy Coach, Thrive On Consulting
Tami Pyles is founder of Thrive On Consulting.  She works daily to help those with food allergies learn practical day-to-day management strategies to Thrive On with food allergies.  She also creates education and awareness so that everyone is prepared to help those with food allergies Thrive On.  She is a food allergy mom who manages her daughter’s several life-threatening food allergies, a food allergy advocate and has completed the... Read More →


Sunday May 15, 2016 8:00am - 9:00am
Florida Ballroom C

9:00am

What Chefs Know

Dining out can be challenging and scary. To make it more manageable there are a few steps that can be taken to have a successful dining experience. It is important to do your homework before dining out. From choosing the right restaurant, what questions you should ask the manager, server, and/or chef to what menu options are available. We'll also talk about some important considerations for college prep and dining on and around campus.

Joel Schaefer, chef and author of Serving People with Food Allergies, Kitchen Management and Menu Creation and former Special Diets Manager of Walt Disney World will help you navigate the dining experience so you and your family can have a safe meal while dining out.


Speakers
avatar for Joel Schaefer

Joel Schaefer

Executive Chef
Joel is a certified Chef de Cuisine with the American Culinary Federation and a Certified Hospitality Trainer with the American Hotel and Lodging Association. He is the author of Serving People with Food Allergies: Kitchen Management and Menu Creation. He has worked with FARE to provide quality-training material for their food service programs. He worked as a subject matter expert on the ServSafe Allergens™ for the National... Read More →




Sunday May 15, 2016 9:00am - 10:00am
Plaza Ballroom D Hyatt Regency Orlando

9:00am

Food Allergy Myths
This interactive presentation will allow the audience to learn about frequent food allergy myths, and dispel them to allow improved healthcare outcomes and quality of life.

Speakers
avatar for Theresa Bingemann, MD

Theresa Bingemann, MD

Dr. Bingemann is a Clinical Assistant Professor of Pediatrics and Medicine at the University of Rochester and is employed by Rochester Regional Health System. Her duties include teaching medical students, residents, and fellows in the clinical and academic settings. She is the Allergy & Immunology editor for Pediatrics in Review. She is board certified in Allergy and Immunology, Medicine and Pediatrics.


Sunday May 15, 2016 9:00am - 10:30am
Florida Ballroom A-B Hyatt Regency Orlando

9:00am

Research Discussion: Issues and Obstacles for Anaphylaxis Management
This panel discussion session will share findings on current research studies that focus on patient concerns related to epinephrine usage and anaphylaxis management. Discussion areas will include: understanding of device usage; epinephrine access; and financial obstacles.

Speakers
avatar for Lee Baylis, MD, FCCP

Lee Baylis, MD, FCCP

Dr Lee Baylis is a board-certified allergist who is currently the medical director, EpiPen® Auto-Injector at Mylan Specialty Pharmaceuticals based in Canonsburg, PA. Prior to joining Mylan, Dr. Baylis was in respiratory medical affairs at Boehringer-Ingelheim for 6 years. He practiced allergy/immunology in private practice in Michigan for 15 years. He completed his allergy/immunology fellowship at Henry Ford Hospital in Detroit, MI and his... Read More →
DB

Duncan Brown, PhD

Duncan Brown PhD, is an Associate Director in Global Health Economics and | Outcomes Research (GHEOR) scientific consulting at Xcenda. In his role, he conducts | a range of HEOR engagements including economic modelling, global market access | strategies, health technology assessments, evidence gap analysis, advisory boards, | and in-depth payer interviews. Dr. Brown also has extensive experience in managed | markets strategy and global payer... Read More →
avatar for Ruchi Gupta, MD MPH

Ruchi Gupta, MD MPH

Dr. Gupta is an associate professor of pediatrics (FAAP, FAAAAI) and an interdisciplinary child health researcher. She is affiliated with both the Northwestern University Feinberg School of Medicine's Institute for Public Health and Medicine, as well as the The Ann & Robert H. Lurie Children's Hospital of Chicago's Smith Child Health Research Program. Her research portfolio spans from the clinical diagnosis and management of childhood food... Read More →


Sunday May 15, 2016 9:00am - 10:30am
Florida Ballroom C

10:30am

Break and Exhibitor Raffle Drawing
Sunday May 15, 2016 10:30am - 10:45am
Florida Ballroom A-B Hyatt Regency Orlando

10:45am

Navigating the Health Care System
Being newly diagnosed with a food allergy leads to a flurry of emotions and questions.Unfortunately, despite the many medical advances that have been achieved indiagnosing and managing food allergies, not all health providers are equally equipped to provide loved ones support and information they need at this critical time. This session is designed to help parents and caregivers of food allergic children receive the care they need by learning how to find the best health professionals, ask the right questions, and make the most out of a visit. The session will also reach out to nurses and other members of the health care team to encourage ways they can provide care that meets the needs of the entire family.

Speakers
avatar for Lila de Tantillo

Lila de Tantillo

PhD Student, University of Miami
Lila de Tantillo is a nurse and mother of two children, one of whom has asthma and severe allergies. Although now a healthcare provider, at the time her first child was diagnosed with food allergies, she was not in the medical field. Navigating the world of hospitals and specialists proved to be a frightening, confusing, and ultimately a learning experience. She hopes to inspire other mothers and loved ones of allergic children from what she... Read More →


Sunday May 15, 2016 10:45am - 11:40am
Florida Ballroom A-B Hyatt Regency Orlando

10:45am

Navigating College with Food Allergies
Speakers
avatar for Gabrielle Alter

Gabrielle Alter

Student, Alma College
Gabrielle is a student at Alma College, where she is currently majoring in Psychology and Religious Studies. She has a severe milk allergy that she has had to deal with throughout her entire life. She is very passionate about education regarding the resources available for students who have food allergies and wants to make sure that students are not limiting themselves just because they have a food allergy.
avatar for Kristi Grim

Kristi Grim

National Programs Manager, FARE
Kristi Grim is the College Outreach Manager for Food Allergy Research & Education (FARE).  As part of the FARE team, Kristi works to ensure the safety and inclusion of students with food allergies on college campuses.  Kristi worked with committees and expert stakeholders to develop FARE's Pilot Guidelines for Managing Food Allergies in Higher Education, which form the basis for the College Food Allergy Program. She worked with... Read More →
avatar for Kristie Orr

Kristie Orr

Director of Disability Services, Texas A&M University
Kristie Orr is the Director of Disability Services at Texas A&M University and has worked in Disability Services for 17 years. Kristie has her M.Ed. in Counseling, Clinical, and School Psychology from the University of California at Santa Barbara and her Ph.D. in School Psychology from Texas A&M University. Kristie has presented at state and national conferences on issues related to working with students with disabilities. She... Read More →


Sunday May 15, 2016 10:45am - 11:40am
Florida Ballroom C

10:45am

Channeling the Fear - Food Allergy Advocacy for Teens

Calli will share her personal story about her food allergy challenges from childhood to the teen years and how she became her own advocate while being an advocate for others.


Speakers
avatar for Calli Brielle McIntyre

Calli Brielle McIntyre

Calli Brielle McIntyre is a freshman honor student at the O'Neal School in Pinehurst, North Carolina. She was a 2015 top ten National Youth Activist Award nominee and she is the current reigning Miss Garner's Outstanding Teen, a preliminary title holder in the Miss America’s Outstanding Teen Program. Through her personal experiences of being bullied because of her food allergies, Calli created her personal platform in 2009 to bring... Read More →


Sunday May 15, 2016 10:45am - 11:40am
Plaza Ballroom D Hyatt Regency Orlando